Skip to main content

Renal Fanconi Syndrome clinical trials at University of California Health

1 research study open to eligible people

Showing trials for
  • Cure Cystinosis International Registry

    open to all eligible people

    Cure Cystinosis International Registry (CCIR) is an online, patient self-identifying registry developed by medical and scientific experts specifically for the cystinosis community. CCIR's sole purpose is to identify people with cystinosis worldwide in an effort to accelerate novel treatments and a cure for cystinosis. CCIR provides a safe and secure platform for: - sharing anonymous medical information about cystinosis with researchers, clinicians and patients - disseminating information about research opportunities - connecting researchers/investigators and prospective participants * Interested cystinosis patients may register themselves with CCIR online at * No personal information is shared outside of CCIR. Individual identities are known only to appropriate CCIR staff. If a participant is matched to a clinical trial, the participant receives a notice from CCIR, after which they can decide whether they wish to contact the study sponsor.

    at UCSD

Our lead scientists for Renal Fanconi Syndrome research studies include .

Last updated: