This study is in progress, not accepting new patients

A Prospective Longitudinal Study in Adults With Multifocal Motor Neuropathy

a study on Neuropathy

Summary

Eligibility
for people ages 18 years and up (full criteria)
Location
at UC Davis UC Irvine UCSF
Dates
study started
study ends around
Principal Investigator
by Madina Tugizova (ucsf)
Headshot of Madina Tugizova
Madina Tugizova

Description

Summary

This prospective longitudinal study will follow participants with Multifocal Motor Neuropathy over time and collect data on their clinical outcomes, quality of life, and use of health care resources. Participants will follow their regular visit schedule with their treating physician, except for an optional second visit occurring 7 to 14 days after the start of the study to collect biomarker data. No IMP will be administered.

Official Title

A Multicenter Prospective Longitudinal Study of Clinical Outcomes, Disease Course, Health-Related Quality of Life, and Health Care Resource Utilization in Adult Patients With Multifocal Motor Neuropathy

Keywords

Multifocal Motor Neuropathy

Eligibility

You can join if…

Open to people ages 18 years and up

  • Is at least the local legal age of consent for clinical studies when signing the ICF
  • Is capable of providing signed informed consent and complying with protocol requirements
  • Has an existing or new diagnosis of MMN made by a neuromuscular specialist or neurologist

You CAN'T join if...

  • Is currently participating in any clinical study with an IMP
  • Has other medical conditions that could affect the assessment of MMN

Locations

  • UCI Health - ALS and Neuromuscular Center
    Orange California 92868 United States
  • UC Davis Health - Lawrence J. Ellison Ambulatory Care Center
    Sacramento California 95817-2307 United States
  • UCSF Health - UCSF Medical Center
    San Francisco California 94143-2204 United States
  • Stanford Medicine Health Care - Stanford Neuroscience Health Center
    Palo Alto California 94304 United States

Lead Scientist at University of California Health

  • Madina Tugizova (ucsf)
    Dr. Madina Tugizova is an Assistant Professor at the University of California, San Francisco. She is board-certified in neurology and neuromuscular medicine. She provides care to patients in the adult neuromuscular clinic, and she performs electromyography (EMG) and nerve conduction studies.

Details

Status
in progress, not accepting new patients
Start Date
Completion Date
(estimated)
Sponsor
argenx
ID
NCT05988073
Study Type
Observational
Participants
About 413 people participating
Last Updated