Porphyria clinical trials at University of California Health
2 in progress, 1 open to eligible people
Showing trials for
Longitudinal Study of the Porphyrias
open to all eligible people
The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.
at UCLA UCSF
HELIOS: Open-Label, Long-Term Extension Study to Investigate the Safety, Tolerability, and Efficacy of DISC-1459 (Bitopertin) in Participants With EPP or XLP
Sorry, accepting new patients by invitation only
This is an open-label, long-term extension study to investigate the safety, tolerability and efficacy of DISC-1459 in participants with EPP.
at UCSF
Our lead scientists for Porphyria research studies include Simon Beaven, MD, PhD Bruce Wang, MD.
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