Summary

Healthy Volunteers
healthy people welcome
Location
at UCSF
Dates
study started
estimated completion
Principal Investigator
by Robert Goldsby, MD (ucsf)
Headshot of Robert Goldsby
Robert Goldsby

Description

Summary

This clinical trial studies the effectiveness of a newly developed survivorship mobile application (app) designed for survivors, or their caregivers, of childhood cancer to help them better navigate long-term follow-up care. The survivorship app provides survivors access to their treatment history and follow-up recommendations, improves knowledge of their diagnosis, treatment, risks, and recommended follow-up care by using a message notification. The ability to quickly connect and establish care planning may enhance adherence to recommended follow-up.

Official Title

Utilizing a Mobile App to Help Survivors of Childhood Cancer Navigate Long-Term Follow-Up Care

Details

PRIMARY OBJECTIVE: I. To determine the difference in survivor/caregiver knowledge and understanding of diagnosis, treatment information, and follow-up needs using the survivorship app. SECONDARY OBJECTIVE: I. To validate the usability and effectiveness of the survivorship mobile application. OUTLINE: Participants are seen in the survivorship clinic and receive education about potential late effects and the survivorship application on study. Participants then use the survivorship app for 4 months on study.

Keywords

Childhood Cancer, Hematopoietic and Lymphoid Cell Neoplasm, Malignant Solid Neoplasm, Neoplasms, Survivorship mobile application

Eligibility

You can join if…

  • Survivors of childhood cancer attending Survivorship Clinic at University of California, San Francisco (UCSF) OR caregivers of a childhood cancer survivor attending Survivorship Clinic at UCSF.
  • Must have a mobile device (smartphone or smart-tablet) with service plan.
  • Must have ability to read, write, and understand English language.

You CAN'T join if...

  • An individual who does not meet any of the criteria mentioned above will be excluded from participation in this study.

Location

  • University of California, San Francisco
    San Francisco California 94143 United States

Lead Scientist at University of California Health

  • Robert Goldsby, MD (ucsf)
    Professor, Pediatrics, School of Medicine. Authored (or co-authored) 116 research publications

Details

Status
not yet accepting patients
Start Date
Completion Date
(estimated)
Sponsor
University of California, San Francisco
ID
NCT05641961
Study Type
Interventional
Participants
Expecting 30 study participants
Last Updated