This study is not yet accepting patients

Caregivers Preparing for Their Own Health Care Emergency

a study on Dementia Caregivers

Summary

Eligibility
for people ages 18 years and up (full criteria)
Dates
study started
completion around
Principal Investigator
by Rebecca S Boxer, MD, MS (ucdavis)

Description

Summary

The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.

Official Title

Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency

Keywords

Dementia, Caregiver Burden, Emergencies, Coaching Sessions, EPT-C, EPT-A

Eligibility

You can join if…

Open to people ages 18 years and up

  • Must be 18 years of age or older at the time of signing the informed consent
  • Must self-identify as the spouse or partner of the PWD
  • Must provide some caregiving to a PWD
  • Must live in the same dwelling as the PWD

You CAN'T join if...

  • Diagnosis of dementia
  • Unable to use or does not have access to a computer
  • Complete deafness or blindness and/or unable to use a telephone
  • Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD
  • Unable to follow directions
  • Unable to read or write in English
  • Participation in prior study involving the EPT

Lead Scientist at University of California Health

  • Rebecca S Boxer, MD, MS (ucdavis)
    Professor, Med: Int Med Geriatrics and PC, School of Medicine. Authored (or co-authored) 89 research publications

Details

Status
not yet accepting patients
Start Date
Completion Date
(estimated)
Sponsor
University of California, Davis
Links
AARP, National Alliance for Caregiving. Caregiving in the U.S. 2020. AARP; 2020. doi:10.26419/ppi.00103.001 Reinhard S, Ryan E. Stepping Up to Support Family Caregivers. blog.aarp.org. June 7, 2016. https://blog.aarp.org/thinking-policy/stepping-up-to-support-family-caregivers
ID
NCT06635876
Study Type
Interventional
Participants
Expecting 68 study participants
Last Updated